Self-Help
No longer alone
Cluster headache is rare – the chance of meeting someone in everyday life who knows what an attack feels like is small. In the association you meet people who know it from their own experience.
For Patients · CKVÖ
You live with
cluster headache.
The Cluster Kopfschmerzen Verein Österreich (Austrian Cluster Headache Association) is the first point of contact for patients in the German-speaking world. Community, information and support – from people who know it first-hand.
Numbers · Rarity
What you already know – in numbers
Cluster headache is one of the most intense forms of pain known to medicine. Its rarity makes diagnosis and understanding difficult – which makes a strong community all the more important.
~1 %
of the population affected
5–15 min
up to 3 h attack duration
3:1
men to women
avg. 7 yrs
until the correct diagnosis
Membership · What you get
What the association offers you
Membership means more than an annual fee. You become part of a community that actively works towards improvements for patients in Austria.
Awareness
Being heard
The association campaigns publicly for better awareness and faster diagnoses. As a member, you are part of this voice – towards doctors, the media and policymakers.
Counselling
Psychosocial support
Through our partner association clusterberatung.at, psychological support is available to you – for the time between attacks and during acute crisis periods.
Online Group
Digital exchange
In our moderated online group you can connect with other patients across Austria at any time – without geographical boundaries.
Membership
Become a member now
The membership application takes only a few minutes to complete. The annual fee goes directly into awareness work, self-help services and the running of the association.
Further Reading · Blog
Helpful articles for patients
Articles that make typical themes of everyday life with cluster headache tangible – from the psychological burden to coping with acute crises.
- Mental Health
Cluster headache and mental health
Why chronic pain clusters put such a strain on mental health – and what has a stabilising effect.
Read the article (in German) - Self-Care
Self-care & stress management
Practical routines for easing the strain between attacks.
Read the article (in German) - Crisis Moment
When the pain takes over
An honest piece about the feeling of reaching your psychological limit – and what helps then.
Read the article (in German)
Questions before joining? verein@clusterkopfschmerzen.at or reach us directly via our contact page.